The study registered 310 patients thanks to the collaboration of twelve hospital clinics in Catalonia.
The two initial phases of the research programme backed by the María Agustí Foundation and Hemiweb, carried out by the Sant Joan de Déu Hospital and the Barcelona Children’s Hospital and supported by the Ramon Molinas Foundation have concluded. The research programme aimed to estimate, for the first time, the crude rate of the prevalence of child hemiparesis in Spain. Since the study began in March 2017, data from the clinical records of patients with child hemiparesis between 0 and 19 years old with congenital child hemiparesis visiting both public and private Paediatric Neurology Services of General and Paediatric Hospitals in the metropolitan area of Barcelona, and then in Catalonia.
The study registered a total of 310 patients that live with hemiparesis. The results obtained will allow problems to be detected that will lead to improvements in the care of children with hemiparesis, mostly on a neurocognitive level. The research revealed that in 69% of cases, there is mild motor impairment, as well as relevant data on the presence of epilepsy (29.5%), intellectual disability (22%), learning difficulties (39%) and language disorders (29%), among others.
The first two phases of the research programme have been awarded one of the five best communications at the annual XLI meeting of the Spanish Society of Paediatric Neurology, Sociedad Española de Neurología Pediátrica (SENEP), held in Girona, 14-16th June 2018. The study counted on the collaboration of 12 hospital clinics: Hospital Sant Joan de Déu, Hospital de Nens de Barcelona, Hospital Universitari Vall d’Hebron, Hospital Parc Taulí de Sabadell, Hospital Universitari Arnau de Vilanova, Hospital Germans Trias i Pujol, Hospital de la Santa Creu i Sant Pau, Hospital Universitari Mútua de Terrassa, Hospital del Mar, Hospital Josep Trueta de Girona, Hospital Universitari de Vic and Aspace.
The third phase of the study will aim to reach 95% of people with child hemiparesis in Spain, helping researchers to understand the impact of this mild form of cerebral palsy that hinders movement in one entire half of the body. The lack of statistical figures and knowledge about child hemiparesis makes it difficult to conduct an analysis on the causes and possible therapies that could change the impact and quality of life of young people living with the condition. The researchers conducting the study believe that taking a deeper look at the subject could improve the quality of life of those affected, as early diagnosis and treatment in the acute phase would allow children to receive more personalised physiotherapy treatments, faster.
More information at Training and research.
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